Amyloidosis Awareness Month | oneAMYLOIDOSISvoice

Amyloidosis Awareness Month


The Amyloidosis Foundation spreads awareness through ‘Amyloidosis Awareness Month’ in March 2019. Most people are unfamiliar with amyloidosis, often diagnosed late since they are unaware of what this rare disease is or what the symptoms are. The Amyloidosis Foundation is working to change that, declaring March as Amyloidosis Awareness Month.

Charlotte Haffner, a member of the AF Board of Directors and an amyloidosis patient herself, says “Raising awareness for amyloidosis is one of the most important things you can do as a patient or if your life has been touched by this disease.”

We began in 2018, by passing state resolutions to recognize Amyloidosis Awareness Month in Tennessee, Michigan and Louisiana. Indiana passed a resolution in January 2019. We have advocates working on similar legislation in the following states for 2019: Arkansas, California, Florida, Georgia, Kentucky, Nebraska, New York, Pennsylvania, Utah, Virginia and Wisconsin.

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Amyloidosis Awareness Month

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