Data DIY – Data Trusts and Governance | oneAMYLOIDOSISvoice

Data DIY – Data Trusts and Governance


Part 2 of Global Genes’ new Data DIY series will build our common understanding of the rights we have as data owners and our responsibilities as data stewards. Led by experts in data collection collaboration agreements, you’ll learn how to develop a governance plan for your program that includes key elements, such as:
 
• Defining program objectives
• Identifying stakeholders
• Building your team
• Protecting participants’ privacy
• Providing for informed consent
• Determining how data is accessed
• Ensuring sustainability over time
 
Wednesday Evening Welcome Reception: Join fellow guests for a casual meet and greet. The evening welcome reception will be July 17th from 5:00 pm to 7:00 pm EST.
 
The workshop will be held on Thursday, July 18th, followed by office hours on Friday, July 19th, where attendees will be able to schedule one-on-one time with the experts.
 
When:
July 17-19, 2019
 
Where:
Washington Marriott Georgetown
1221 22nd Street Northwest

Washington, DC, United States

This event has ended. Download Presentation Slides.

 
Data DIY – Data Trusts And Governance