DISCLAIMERThe information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.
|rareLife solutions 606 Post Road East #397
Westport, CT 06880
|You are receiving this because you have an account on www.oneAMYLOIDOSISvoice.com|
|To unsubscribe from these emails, click here|
Trusted Resources: News & Meetings
Latest announcements and gatherings
Patrick Doherty had always been very active. He trekked the Himalayas and hiked trails in Spain. But about a year and a half ago, he noticed pins and needles in his fingers and toes. His feet got cold. And then he started getting out of breath any time he walked his dog up the hills of County Donegal in Ireland where he lives. “I noticed on some of the larger hill climbs I was getting a bit breathless,” says Doherty, 65. “So I realized something was wrong.”
Doherty found out he had a rare, but devastating inherited disease – known as transthyretin amyloidosis – that had killed his father. A misshapen protein was building up in his body, destroying important tissues, such as nerves in his hands and feet and his heart.
videos & visualsCOMO falar com seus familiares sobre seu diagnóstico de hATTRhttps://www.oneamyloidosisvoice.com/wp-c...
videos & visualsLiver Transplant for ATTRmhttps://www.youtube.com/watch?v=vJhUXyBF...
news & meetingsFirst Gene-Editing Treatment Injected Into the Blood Reduces Toxic Protein for up to 1 YearThe first team to disable a disease gene...
news & meetingsLandmark CRISPR Trial Shows Promise Against Deadly DiseasePreliminary results from a landmark clin...
news & meetingsMajor Advances are Afoot in Management of ATTR Cardiac AmyloidosisCardiac amyloidosis, traditionally consi...
educationHereditary ATTR Thr60Ala AmyloidosisHereditary ATTR amyloidosis is an inheri...
educationHow to Talk With Your Family About Your hATTR Amyloidosis Diagnosis?Talking to your family members about you...
send a message
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.