DISCLAIMERThe information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.
|rareLife solutions 606 Post Road East #397
Westport, CT 06880
|You are receiving this because you have an account on www.oneAMYLOIDOSISvoice.com|
|To unsubscribe from these emails, click here|
Trusted Resources: News & Meetings
Latest announcements and gatherings
oneAMYLOIDOSISvoice.com Support Group Platform Begins Empowering the Amyloidosis Community With Invaluable Info About Amyloidosis
rareLife solutions today announced that oneAMYLOIDOSISvoice.com—a free, online education community for those wishing to better understand amyloidosis symptoms, diagnosis, treatment and survival—is now live. Amyloidosis is a life-altering, incurable disease in which an abnormal buildup of amyloid protein can potentially trigger heart failure and severe damage to the nerves, kidneys and other vital organs. Amyloidosis occurs in several forms; in the U.S., new cases annually number in the thousands, while worldwide they may be as high as 13 million.
oneAMYLOIDOSISvoice aims to provide greater disease knowledge, stronger emotional support, and improved awareness of the symptoms and risk factors associated through its three core features: Trusted Resources, the Social Wall, and Diagnosis Educator, emphasized rareLife Co-Founder and Chief Operating Officer T. Anthony Howell.
Muriel Finkel, president of Wood Dale, Illinois-based nonprofit Amyloidosis Support Groups Inc., hailed the new platform as a vital new tool in the battle against amyloidosis.
people & placesLaurence RondaLaurence Ronda is associated with the As...
people & placesUniversity of Colorado Cardiac Amyloidosis ProgramThe University of Colorado Cardiac Amylo...
videos & visualsCardiac Amyloidosis: What Every Cardiologist Needs to Know – Mayo Clinichttps://www.youtube.com/watch?v=6WIAPzWm...
news & meetingsAmyloidosis Support Groups (ASG) Launches new Amyloidosis Patient RegistryThe Amyloidosis Patient Registry is a ne...
people & placesNational Organization for Rare DisordersNational Organization for Rare Disorders...
people & placesAmyloidosis FoundationThe Amyloidosis Foundation began with th...
news & meetingsHereditary ATTR Amyloidosis: Educational OverviewHow may carpal tunnel syndrome, numbness...
send a message
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.