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Trusted Resources: News & Meetings
Latest announcements and gatherings
The Amyloidosis Alliance and worldwide patients organization has created an International Day of Awareness dedicated to this rare disease, with different participating countries throughout the world.
The objective of this World Amyloidosis Day is to alert the world about the diagnostic delay that patients face, which averages 4 years.
Faster diagnoses and better quality treatment can only be achieved by more widespread knowledge of the disease.
Our campaign is aimed at all: health authorities and professionals, pharmaceutical companies, scientists, associations, etc. Let’s be the link to supporting patients and their loved ones.
October 26, 2022
news & meetingsNational Wear Red DayJoin NHLBI, The Heart Truth®, and organ...
news & meetingsSCMR Partners With Foundation to Promote March as Amyloidosis Awareness MonthThe Society for Cardiovascular Magnetic ...
news & meetingsRare Disease DayRare Disease Day takes place on the last...
news & meetingsCelebrating Nurses’ WeekNurses’ week takes place between Thurs...
news & meetingsLight the Night for Amyloidosis — Amyloidosis Foundation“Light the Night for Amyloidosis” is...
news & meetingsSean McDonough Celebrity Golf ClassicJoin Sean McDonough for this special two...
news & meetingsRare Disease Day Symposium at the Quinnipiac Frank H. Netter MD School of MedicineThe Rare Disease Day Symposium at the Qu...
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