Trusted Resources: News & Meetings
Latest announcements and gatherings
Hereditary amyloidosis in Brazil: a focus on access to diagnosis and treatment
Amyloidosis, A Tricky Diagnosis, Can Be Traced to Vietnam and Exposure to Agent Orange
With CRISPR Gene Editing, Unique Treatments Begin to Take off for Rare Diseases
He Inherited A Devastating Disease. A CRISPR Gene-Editing Breakthrough Stopped It
Early Diagnosis Made the Difference for Vince
Matt Millen Featured In Episode Of ‘The B1G Story’
The Orphan Drug Act Turns 40: NORD Celebrates Its Impact on Rare Diseases
Second World Amyloidosis Day
Health System First in Nation to Offer Treatment for Hereditary Amyloidosis
Stem Cell Transplantation Produces Prolonged Survival With Improved Safety in Patients With AL Amyloidosis
Alnylam Announces 3-Month Extension of Review Period for New Drug Application for Vutrisiran
XIX ISA Symposium on Amyloidosis 2024
Amyloidosis Support Groups Meeting – Arizona
ATTR-Wild Type and Hereditary Amyloidosis Support Group Meeting October 27-29, 2023
Amyloidosis Support Groups Meeting – Spokane
National Amyloidosis Awareness Day
New FACES Video: Mackenzie’s Mission Needs Patient Pictures
Sean McDonough Celebrity Golf Classic
Taste of Ocean City & Slide for Amyloidosis
19th Annual Chip Miller Surf Fest
Bill’s Race to Beat Amyloid
Play FORE The Cure 2022
CMAF Benefit Dinner: Evening of Corvettes, Dinner & Fun!
Prothena Presents Data Demonstrating Consistent Survival Benefit Observed with Birtamimab in Mayo Stage IV AL Amyloidosis Patients in Phase 3 VITAL Study at ASH 2022
Alnylam Reports Positive Topline Results From APOLLO-B Phase 3 Study of Patisiran in Patients With ATTR Amyloidosis With Cardiomyopathy
Positive New Data From Phase 1/2 Trial of AT-01 (Iodine I-124 Evuzamitide) Presented at 2022 Society of Nuclear Medicine & Molecular Imaging Annual Meeting
Alnylam Presents New 18-Month Results From Exploratory Cardiac Endpoints in HELIOS-A Phase 3 Study of Investigational Vutrisiran
oneAMYLOIDOSISvoice.com Support Group Platform Begins Empowering the Amyloidosis Community With Invaluable Info About Amyloidosis
HealthWell Foundation Opens New Amyloidosis Fund to Assist Patients With Treatment Costs
SCMR Partners With Foundation to Promote March as Amyloidosis Awareness Month
Alexion Pharmaceuticals Partners With Caelum Biosciences to Tackle Light Chain Amyloidosis
AHN Launches New Amyloidosis Program
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