source: ChangehATTR summary/abstract:
It is important to talk to your employer about your diagnosis so that they can know how you’re feeling and how it may affect your work. Your manager can only help you if s/he knows about your condition. A few things to consider:
• It may be helpful to make a list of coworkers and clients you think should know about your hATTR amyloidosis diagnosis.
• Have a plan going in to these conversations and what you would like to get out of them.
• Discuss how you think your diagnosis will affect your work and how you and your boss can work together to move forward in your career.