Trusted Resources: Education
Scientific literature and patient education texts
Talking With Your Doctor About hATTR Amyloidosis
source: ChangehATTR
year: 2018
summary/abstract:Are You Experiencing Symptoms and Suspect hATTR?
- If you know you have a family history of hATTR amyloidosis, make sure to compile your healthcare records to help aid conversation with your doctor. Giving your doctor a comprehensive explanation of your family symptoms and how it has impacted your relatives can help with diagnosis.
TIP: Try to think back if deceased family members were affected by one of the symptoms of hATTR amyloidosis, as they may have unknowingly been affected by the disease. - Be prepared to provide your doctor with an overview of all of your symptoms. It is important to keep in mind that symptoms often seem unrelated, so be sure to consult the hATTR amyloidosis symptom checklist to learn more about the way the disease can manifest. The more educated you are on the disease, the better you can speak to your symptoms.
- Come prepared with any medical records or tests performed previously. The more information your doctor has the easier it will be to decide a course of action.
Related Content
-
American Society of Nuclear CardiologyThe American Society of Nuclear Cardiolo...
-
Cardiac Amyloidosis: On the Road in South Florida – CANCELEDAs part of an ongoing effort to expand a...
-
With CRISPR Gene Editing, Unique Treatments Begin to Take off for Rare DiseasesIn February last year, Doherty — now a...
-
Treatment for ATTR Cardiomyopathy – ASG Webinar 2/7https://www.youtube.com/watch?v=IzC_yaqs...
-
Rare Disease DayRare Disease Day takes place on the last...
-
Cleveland Clinic Amyloidosis CenterCleveland Clinic is dedicated to being a...
-
Webinar Event on Progress in Amyloidosis Research: Where Are We Now?Join a Live Webinar Event on “Prog...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences.
More information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences.
More information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.