Trusted Resources: Education
Scientific literature and patient education texts
Consensus recommendations on holistic care in hereditary ATTR amyloidosis: an international Delphi survey of patient advocates and multidisciplinary healthcare professionals
Https://bmjopen.bmj.com Year: 2024Treatment of AA Amyloidosis
Amyloidosis.org.uk: Amyloidosis Patient Information SiteAA Amyloidosis FAQs
Amyloidosis FoundationAA amyloidosis, or secondary amyloidosis, is one type of the rare disorder amyloidosis. This disorder happens when proteins in your body mutate, changing form and gathering on your organs and tissues. AA amyloidosis happens because you have a chronic inflammatory condition or disease. Healthcare providers treat AA amyloidosis by controlling the underlying disease or condition.
Long-term survival in people with transthyretin amyloid cardiomyopathy who took tafamidis: a plain language summary
Future Cardiology Year: 2023In this edition we hear from John Hicks and his experience of being a carer to his wife Joyce for the last 6 years. We also have an update from Gary Mines, who was previously featured in AL amyloidosis Matters in Summer 2017. He updates us with his experience of daratumumab (Darzalex®). Our living well section covers emotional support and its importance in AL amyloidosis.