Education
Cardiac amyloidosis occurs when plaques of protein byproduct called amyloid build up in heart muscle, affecting its ability to pump blood. To confirm a diagnosis…
People living with rare diseases face a unique set of challenges, from reaching a timely and accurate diagnosis to accessing treatment. Although individual rare…
Wild-type ATTR is also referred to as ATTRwt. It is not caused by any known genetic mutations, such as in the case of hereditary forms of the disease (hATTR). This…
In this episode, Frederick Ruberg, MD, and Mathew Maurer, MD, discuss key topics in cardiac amyloidosis such as the evolving understanding of the epidemiology of…
We recommend that patients with myeloma and related disorders, whether on or off chemotherapy, receive COVID vaccination as soon as it is available and offered to…
When a family member has been diagnosed with hATTR amyloidosis, the range of symptoms that come with the disease may require a loved one to become a caregiver.…
hATTR amyloidosis is a genetic disorder that may affect you and others in your family. An open and honest conversation about your experience may encourage others to…
Caregiver burnout is a state of physical, emotional and mental exhaustion. It may be accompanied by a change in attitude, from positive and caring to negative and…
Here Are Some Steps You Can Take to Help Prevent Caregiver Burnout:
* Find someone you trust -- such as a friend, co-worker, or neighbor -- to talk to about your…
If you are already suffering from stress and depression, seek medical attention. Stress and depression are treatable disorders. If you want to prevent burnout,…