community center - online groups, photo galleries & blogs | oneAMYLOIDOSISvoice

Alnylam Assist®: Support for Every Step

Alnylam Assist® is a comprehensive patient support program that offers truly personalized assistance to patients getting started on treatment with ONPATTRO or other Alnylam products.

Amyloidosis Medicare Drug Coverage

The chart presents the idea about amyloidosis drugs and its medicare coverage.

What’s Legal About Cancer Resources

Browse free educational resources on practical and legal issues that arise after a cancer diagnosis like health insurance, financial toxicity, disability insurance, work and employment, and more.

Jill Weaver Starkman Scholarship

The Jill Weaver Starkman Scholarship offered by Ulman Cancer Fund for Young Adults is awarded to young adults who have cancer or who have conquered it or, to young adults who have selflessly more

Joanne Wood Scholarship

The Joanne Wood Scholarship Fund is a charity organization. It was created in 2012 to honor the life of Joanne Wood and help with something she believed in strongly, education. The Joanne Wood more

Kidney & Urology Foundation of America Scholarships

The Kidney & Urology Foundation of America is proud to offer a scholarship and awards program for kidney and urology patients. One of only a few such initiatives in the country, our Scholarship ( more

Rexanna’s Foundation Scholarship

In honor of Rexanna’s many years in education, her love for students and her passion to find a cure for lung cancer – Rexanna’s Foundation will be awarding college scholarships to students to more

The Bone Marrow Foundation’s Scholarship Grants

The Bone Marrow Foundation’s Scholarship Grants principally targets students enrolled in public schools, two- and four-year academic programs, specific trade schools and homebound educational more

The Professor Michael Lewis Goldberg TRIO Scholarship Program

TRIO (Transplant Recipients International Organization) is an independent, not-for-profit, international organization committed to improving the quality of life of transplant candidates, recipients, more

COVID-19 Ancillary Costs – HealthWell Foundation

Fund Definition: Assistance with costs associated with delivered food, medication, diagnostics, transportation and telehealth as a result of COVID-19 risk or incidence. Due to funding restrictions, more

COVID-19 Insurance Premium Payment Assistance – HealthWell Foundation

Fund Definition: Limited time assistance with employee portion of insurance premium costs related to COVID-19 furloughs and COBRA Premium costs related to COVID-19 layoffs/unemployment.   Under more

Find Patient Assistance With FundFinder, The Patient Access Network (PAN) Foundation

Are you tired of monitoring the status of disease funds at charitable patient assistance foundations every week? Are you looking for a simple way to tell which disease funds are open without having more

HealthWell Foundation Amyloidosis Fund

Co-payment or premium assistance for eligible beneficiaries to obtain prescription drug (or biologics) for the treatment of Amyloidosis. Under this fund, HealthWell can assist with premium costs. more

Leukemia & Lymphoma Society’s Meyloma Associated Amyloidosis Funds

Leukemia & Lymphoma Society (LLS) is part of the Cancer Financial Assistance Coalition (C-FAC), which helps cancer patients manage their financial challenges by: • Helping members more


Since 1987, National Organization for Rare Diseases (NORD) has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These more

Spierings Cancer Foundation Grant

The Spierings Cancer Foundation is always looking to provide grants for important cancer research. The goal of our grant-making process is a review of creative new directions in clinical and/or more

AA – Secondary Amyloidosis – Facebook

AA - Secondary Amyloidosis is a Facebook group that was created on 30 December, 2014. This group is for patients and caregivers with Secondary Amyloidosis (AA) due to Rheumatoid Arthritis, more

Action for Amyloidosis – Facebook

Action for Amyloidosis is an all-volunteer, non-profit organization that benefits patients, families, the medical community and others affected by amyloidosis with energetic programs of more

ALECT2 Amyloidosis Support – Facebook

ALECT2 Amyloidosis Support is a Facebook group that was created on  14 May, 2016. Dorothy Sintas-Abeyta is the patient representative of the ALect2 Alliance. When we have more patients more

Amyloidosis – CAA – Cerebral Amyloid Angiopathy: Facebook

Amyloidosis-CAA- Cerebral Amyloid Angiopathy is created on 16 June 2017 by Muriel.

Amyloidosis – Wild Type – ATTRwt – wtATTR – Facebook

Amyloidosis - Wild Type - ATTRwt - wtATTR is a Facebook group that was created on 27 June, 2017. This group is for patients diagnosed with Wild Type Amyloidosis.

Amyloidosis ATTRv (hATTR) – Hereditary – FAP – FAC – Facebook

Amyloidosis ATTRv (hATTR) - Hereditary - FAP - FAC is a Facebook group that was created on 7 September 2014.

Amyloidosis Awareness – Facebook

It has been twelve years my father an olympic athlete was diagnosed with amyloidosis. Through the years he has had chemotherapy, dialysis, a stem cell transplant, a kidney transplant and more

Amyloidosis Care Giver Support Group – Facebook

This page is to offer positive support to the family members, friends and caregivers of loved ones with amyloidosis. 

Amyloidosis Fibrinogen – Facebook

Amyloidosis Fibrinogen is a Facebook group that was created on 2 April, 2019. The people in this group have Fibrinogen Amyloidosis. You must answer the question to gain access to this more

Amyloidosis Foundation – Facebook

This is the official Facebook page for The Amyloidosis Foundation. This page is designed to raise awareness about amyloidosis and create a community for patients, families and friends more

Amyloidosis Gelsolin Hereditary – Facebook

Amyloidosis Gelsolin Hereditary is a Facebook group that was created on 7 November, 2017.

Amyloidosis Support Groups Inc. – Facebook

Patients, caregivers and loved ones with AL amyloidosis - If you do not answer the questions you will not be allowed to join.  We have other groups on Facebook for hATTR Amyloidosis more

Amyloidosis-Localized Airway – Facebook

Amyloidosis Localized is a Facebook group that was created on 21 June 2015 by Muriel. The name is recently changed from Amyloidosis-Localized Airway.

ApoA1 Amyloidosis – Facebook

ApoA1 Amyloidosis is a Facebook group that was created on 6 March, 2018.

Chip Miller Amyloidosis Foundation (CMAF) – Facebook

The Foundation's mission is to empower people with the knowledge and understanding of amyloidosis for earlier detection, ensuring a better quality of life for those afflicted with the more

@abcardio1 – Instagram

Eliminating #healthdisparities. Promoting prevention of #heartdisease & #stroke via #education #research #advocacy


Supporting patients and families while promoting research, education and awareness.


Documenting my dad’s journey with AL Amyloidosis. “When oceans rise, my soul will rest in Your embrace. For I am Yours and You are mine!”

Alnylam Pharmaceuticals – Linkedin

Alnylam is the world's leading RNAi therapeutics company and the first and only company to bring an RNAi medicine to market. We are developing RNAi (RNA interference) as an innovative, more

Amyloidosis Foundation – LinkedIn

Amyloidosis is a rare disease that manifests itself when amyloid protein deposits accumulate in the body's organs and tissues, ultimately causing organ failure if the deposition is not more

Association of Black Cardiologists, Inc. – LinkedIn

Founded in 1974, the Association of Black Cardiologists, Inc., (ABC) is a nonprofit organization with an international membership of 2,500 health professionals, lay members of the community more

BSIM Therapeutics – Linkedin

BSIM’s mission is to deliver quality drug candidates with high capital efficiency against transthyretin-mediated amyloidosis, including clinical manifestations and related pathologies more

Eidos Therapeutics – Linkedin

Eidos Therapeutics, a subsidiary of BridgeBio Pharma, is developing AG10 as a targeted therapeutic for transthyretin amyloidosis. The company’s singular mission is to improve and prolong more

Ionis Pharmaceuticals, Inc. – Linkedin

As the leader in RNA-targeted drug discovery and development, Ionis has created an efficient, broadly applicable, proprietary antisense technology platform with the potential to treat more

Nephros, Inc. – Linkedin

Nephros is a commercial stage medical device company that develops and sells high-performance liquid purification filters. Nephros filters capture contaminants as small as 5 nanometers in more

Pfizer – Linkedin

Pfizer is a leading research-based biopharmaceutical company. We apply science and our global resources to deliver innovative therapies that extend and significantly improve lives. We make more

Prothena Corporation PLC – Linkedin

Prothena Corporation plc is a clinical-stage neuroscience company focused on the discovery and development of novel therapies with the potential to fundamentally change the course of more

SOM Biotech – Linkedin

SOM Biotech is a clinical-stage drug discovery and development company based in Barcelona, Spain, with an office in the US, focused on repurposing drugs for CNS orphan indications. Its drug more


Amyloid and multiple myeloma clinician-scientist | CIBMTR | Froedtert & Medical College of Wisconsin | #mmsm #amyloidosis


Supporting #amyloidosis patients and families while promoting research, education and awareness.


Amyloidosis Support Groups Inc., nonprofit corporation was formed for the primary purpose of starting and maintaining Amyloidosis Support Groups throughout the United States, dedicated to more


Hi, I'm a bot that tweets the latest in amyloid research from PubMed. Creator: @AvinainderSingh Location: Boston, MA


Hematologist fighting #myeloma & #amyloidosis @ Karmanos Cancer Institute in Detroit, MI #mmsm disclosures/COI


#HeartTransplant #LVAD #NuclearCardiology #amyloidosis #sarcoidosis | @SaintLukesKC @MidAmericaHeart | Former fellow @ClevelandClinic | #HoyaSaxa @Georgetown


This is the official Twitter handle for the Amyloidosis Center at Boston University Medical Campus, recognized as a leader in basic and clinical research on Amyloidosis.


The official Twitter for the Brigham and Women’s Hospital Amyloidosis Program. 


Director, Myeloma/Amyloidosis Program; Associate Director, Heme-Onc Fellowship Program at @sylvestercancer University Miami; Miami Sports Fan; Father of 3.


This channel is dedicated to providing resources & information on hATTR amyloidosis.  


Assoc Prof @BUMedicine. @The_BMC hematologist. Tweeting about all things hematology and AL #Amyloidosis in particular. The J is for Jenius.


Multiple Myeloma, Waldenstroms, Amyloidosis, and Stem Cell Transplant Specialist at UT Southwestern Medical Center, LLS 2015 Man of the Year.


Cardiologist at Mayo Clinic. Former junior #Musketeer. #amyloidosis and #echo. Tweets limited to medicine and #Xavier basketball. My own and not my employer’s.


This is the Twitter account for the Mayo Clinic Amyloidosis Group.


The American Society of Nuclear Cardiology (ASNC) is the International leader in education, advocacy, and quality in cardiovascular imaging.


Twitter Handle: Director, Cardiac Amyloidosis Program, Brigham and Women's Hospital and Harvard Medical School.


Stanford IM residency program director, Cardiologist, Specialist in Amyloidosis, Cardio-Oncology, and Advanced heart failure.


Dr. Suzanne Lentzsch, MD, PhD. Director of the Multiple Myeloma and Amyloidosis Service at Columbia University Medical Center. 


Researcher and practicing physician at UNC in multiple myeloma and amyloidosis. Dad, cub scout leader, very recreational ice hockey player.


Hematologist and Oncologist, Director, Amyloidosis Center @amyloidosis_bu. Hematologist and Oncologist @The_BMC

Amyloidosis Board

Ideas you might love: - Heart failure nursing -Ejection fraction heart -Heart cath -Cardiac rehab -Cardiac cath lab nurse

To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences.
More information

The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.