Happenings
ATTR-Wild Type and Hereditary (Familial) Amyloidosis Support Group Meeting
The Amyloidosis Support Group (ASG) has been holding this biennial support meeting since 2009. This October we expect 500 patients and caregivers from 44 states and Canada. We will have amyloidosis researchers and clinicians ("amyloidologists") along with clinical trial liaisons. We have added a "Meet & Greet" to the Friday night preceding the event.
When:
October 25-27, 2019
Where:
Hilton Rosemont/Chicago O'Hare
5550 N River Road
Rosemont, Illinois, United States
Oct 25, 2019
Clinical Trials and Research
Prothena Reports Results From the Phase 3 VITAL Amyloidosis Study of NEOD001 (Birtamimab) in AL Amyloidosis
Prothena Corporation PLC, a clinical-stage neuroscience company, today reported final results from the Phase 3 VITAL Amyloidosis study of NEOD001 (birtamimab) in newly diagnosed, treatment naive patients with AL amyloidosis and cardiac dysfunction (N=260), which was discontinued in 2018. The final hazard ratio (HR) for the composite primary endpoint (time to all-cause mortality or time to cardiac hospitalization more than 90 days after first infusion of study drug) of 0.835 (95% CI: 0.5799, 1.2011; p=0.3300) was consistent with the futility analysis reported in April 2018.
Post hoc analyses of all-cause mortality revealed a potential survival benefit favoring NEOD001 in the category of patients at highest risk for early mortality (Mayo Stage IV, n=77) with a HR of 0.544 (95% CI: 0.2738, 1.0826; p=0.0787). This potential survival benefit was more pronounced in Mayo Stage IV patients during the initial 12 months of treatment, with a HR of 0.498 (95% CI: 0.2404, 1.0304; p=0.0556).
Apr 18, 2019
New MAP Feature: Treatment Center Comparator
Dec 21, 2018
AHN Launches New Amyloidosis Program
Aug 30, 2018
ARC’s Advocates Work Capitol Hill
Mar 12, 2019
The Rules of the Doctor’s Heart
Oct 24, 2017
American Academy of Neurology Annual Meeting
Apr 25, 2020
Rare Disease Day
Feb 29, 2020
Carolinas Support Group Meeting
Nov 23, 2019
Miami Support Group Meeting
Nov 16, 2019
Dallas Support Group Meeting
Nov 16, 2019
Corvettes for Chip
Oct 27, 2019
Chip Miller Track Day at New Jersey Motorsports Park
Oct 10, 2019
Hugh Claus Memorial Run
Sep 22, 2019
Sean McDonough Celebrity Golf Classic
Sep 15, 2019
Play Fore the Cure 2019
Sep 9, 2019
