HealthWell Foundation Amyloidosis Fund

Co-payment or premium assistance for eligible beneficiaries to obtain prescription drug (or biologics) for the treatment of Amyloidosis. Under this fund, HealthWell can assist with premium costs. Med...read more

Hereditary (hATTR) Amyloidosis Financial Assistance Program, The Assistance Fund

The Assistance Fund, an independent charitable patient assistance foundation that helps patients and families facing high medical out-of-pocket costs, launched a new financial assistance program to pr...read more

Leukemia & Lymphoma Society’s Meyloma Associated Amyloidosis Funds

Leukemia & Lymphoma Society (LLS) is part of the Cancer Financial Assistance Coalition (C-FAC), which helps cancer patients manage their financial challenges by:• Helping members communica...read more

RareCare

Since 1987, National Organization for Rare Diseases (NORD) has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These pro...read more

Spierings Cancer Foundation Grant

The Spierings Cancer Foundation is always looking to provide grants for important cancer research. The goal of our grant-making process is a review of creative new directions in clinical and/or transl...read more

The Chronic & Acute Medical Assistance (CAMA) Program

The Chronic & Acute Medical Assistance (CAMA) program is a state funded program (State of Alaska) designed to help needy Alaskans who have specific illnesses get the medical care they need to mana...read more

Jill Weaver Starkman Scholarship

The Jill Weaver Starkman Scholarship offered by Ulman Cancer Fund for Young Adults is awarded to young adults who have cancer or who have conquered it or, to young adults who have selflessly supported...read more

Joanne Wood Scholarship

The Joanne Wood Scholarship Fund is a charity organization. It was created in 2012 to honor the life of Joanne Wood and help with something she believed in strongly, education. The Joanne Wood Scholar...read more

Kidney & Urology Foundation of America Scholarships

The Kidney & Urology Foundation of America is proud to offer a scholarship and awards program for kidney and urology patients. One of only a few such initiatives in the country, our Scholarship (K...read more

Rexanna’s Foundation Scholarship

In honor of Rexanna’s many years in education, her love for students and her passion to find a cure for lung cancer – Rexanna’s Foundation will be awarding college scholarships to students to go...read more

The Bone Marrow Foundation’s Scholarship Grants

The Bone Marrow Foundation’s Scholarship Grants principally targets students enrolled in public schools, two- and four-year academic programs, specific trade schools and homebound educational prog...read more

The Professor Michael Lewis Goldberg TRIO Scholarship Program

TRIO (Transplant Recipients International Organization) is an independent, not-for-profit, international organization committed to improving the quality of life of transplant candidates, recipients, t...read more

Amyloidosis Foundation Affiliated Support Groups

The Amyloidosis Foundation began with the vision of two patients, Don Brockman and Dennis Krysmalski. Don’s desire to support research and Dennis’s commitment to support patients and increase awar...read more

Amyloidosis Support Groups’ Events

Amyloidosis Support Groups Inc., a nonprofit corporation was formed for the primary purpose of starting and maintaining Amyloidosis Support Groups throughout the United States, dedicated to providing ...read more

Angel Flight

Angel Flight Oklahoma was created by a group of pilots who believe in the benefit of volunteering. We strive to keep all aspects of the organization volunteer. We are a non-profit charitable organizat...read more

Gabriel House of Care

The story behind the Gabriel House of Care begins long before the idea of the house was conceived. It began in the 1940’s with a young boy who was diagnosed with cystic fibrosis. That boy was Jorge ...read more

hATTR Compass Genetic Testing and Counseling Program

Akcea Therapeutics and Ambry Genetics are partnering to offer anonymous, no-cost genetic testing and confidential genetic counseling to patients suspected of having or clinically diagnosed with hATTR ...read more

Lipstick Angels

Lipstick Angels utilizes nurturing beauty services and physical touch to restore, strengthen and protect the dignity, hope and self-respect of seriously ill patients undergoing debilitating treatments...read more

Patient AirLift Services (PALS)

Patient AirLift Services is a nonprofit that arranges free air transportation for individuals requiring medical diagnosis, treatment or follow-up who cannot afford or are unable to fly commercially. ...read more

The Alnylam Act: Genetic Testing and Counseling

The Alnylam Act® program was developed to reduce barriers to genetic testing and counseling to help people make more informed decisions about their health. Genetic testing is available in the United ...read more

Action for Amyloidosis – Facebook

Action for Amyloidosis is an all-volunteer, non-profit organization that benefits patients, families, the medical community and others affected by amyloidosis with energetic programs of supp...read more

Amyloidosis – CAA – Cerebral Amyloid Angiopathy: Facebook

Amyloidosis-CAA- Cerebral Amyloid Angiopathy is created on 16 June 2017 by Muriel.

Amyloidosis Awareness – Facebook

It has been twelve years my father an olympic athlete was diagnosed with amyloidosis. Through the years he has had chemotherapy, dialysis, a stem cell transplant, a kidney transplant and has...read more

Amyloidosis Care Giver Support Group – Facebook

This page is to offer positive support to the family members, friends and caregivers of loved ones with amyloidosis. 

Amyloidosis Foundation – Facebook

This is the official Facebook page for The Amyloidosis Foundation. This page is designed to raise awareness about amyloidosis and create a community for patients, families and friends affect...read more

Amyloidosis Research Consortium – Facebook

The Amyloidosis Research Consortium (ARC) was founded in 2015 by Isabelle Lousada, an AL amyloidosis patient. The ARC addresses critical needs in clinical trials and related research for the...read more

Amyloidosis Support Groups Inc. – Facebook

Patients, caregivers and loved ones with AL amyloidosis - If you do not answer the questions you will not be allowed to join.  We have other groups on Facebook for hATTR Amyloidosis FAP-TT...read more

Amyloidosis-Localized Airway – Facebook

Amyloidosis Localized is a Facebook group that was created on 21 June 2015 by Muriel. The name is recently changed from Amyloidosis-Localized Airway.

Chip Miller Amyloidosis Foundation (CMAF) – Facebook

The Foundation's mission is to empower people with the knowledge and understanding of amyloidosis for earlier detection, ensuring a better quality of life for those afflicted with the diseas...read more

@adsouza_md

Amyloid and multiple myeloma clinician-scientist | CIBMTR | Froedtert & Medical College of Wisconsin | #mmsm #amyloidosis

@Amyloidosisfdn

Supporting #amyloidosis patients and families while promoting research, education and awareness.

@AmyloidosisSupp

Amyloidosis Support Groups Inc., nonprofit corporation was formed for the primary purpose of starting and maintaining Amyloidosis Support Groups throughout the United States, dedicated to pr...read more

@Amyloidosis_ARC

Amyloidosis Research Consortium (ARC) is accelerating the development of and access to new and innovative treatments for systemic amyloidosis.Location: Massachusetts, USA

@Amyloidosis_BU

Official Twitter for the Amyloidosis Center at Boston University Medical Campus, Recognized as a leader in basic and clinical research on Amyloidosis.

@amyloid_papers

Hi, I'm a bot that tweets the latest in amyloid research from PubMed.Creator: @AvinainderSingh Location: Boston, MA

@Amyloid_Planet

Hematologist fighting #myeloma & #amyloidosis @ Karmanos Cancer Institute in Detroit, MI #mmsm disclosures/COI

@BrettSperryMD

#HeartTransplant #LVAD #NuclearCardiology #amyloidosis #sarcoidosis | @SaintLukesKC @MidAmericaHeart | Former fellow @ClevelandClinic | #HoyaSaxa @Georgetown

@BWHAmyloid

The official Twitter for the Brigham and Women’s Hospital Amyloidosis Program. 

@Drjhoffmanmiami

Director, Myeloma/Amyloidosis Program; Associate Director, Heme-Onc Fellowship Program at @sylvestercancer University Miami; Miami Sports Fan; Father of 3.

@Jmarksloan

Assoc Prof @BUMedicine. @The_BMC hematologist. Tweeting about all things hematology and AL #Amyloidosis in particular. The J is for Jenius.

@JWiesmanMD

I am a Harvard-trained doctor and expert in diseases of nerves tweeting pearls about neuropathy and nerves.

@ldandersonjr

Multiple Myeloma, Waldenstroms, Amyloidosis, and Stem Cell Transplant Specialist at UT Southwestern Medical Center, LLS 2015 Man of the Year.

@MarthaGrogan1

Cardiologist at Mayo Clinic.Former junior #Musketeer. #amyloidosis and #echo. Tweets limited to medicine and #Xavier basketball. My own and not my employer’s.

@MayoAmyloid

This is the Twitter account for the Mayo Clinic Amyloidosis Group.

@MyASNC

The American Society of Nuclear Cardiology (ASNC) is the International leader in education, advocacy, and quality in cardiovascular imaging.

@rodney_falk

Twitter Handle: Director, Cardiac Amyloidosis Program, Brigham and Women's Hospital and Harvard Medical School.

@Ron_Witteles

Stanford IM residency program director, Cardiologist, Specialist in Amyloidosis, Cardio-Oncology, and Advanced heart failure.

@SLentzsch

Dr. Suzanne Lentzsch, MD, PhD. Director of the Multiple Myeloma and Amyloidosis Service at Columbia University Medical Center. 

@stuchman1

Researcher and practicing physician at UNC in multiple myeloma and amyloidosis. Dad, cub scout leader, very recreational ice hockey player.

@vsanchorawala

Hematologist and Oncologist, Director, Amyloidosis Center @amyloidosis_bu.Hematologist and Oncologist @The_BMC

Alnylam Pharmaceuticals

Alnylam is the world's leading RNAi therapeutics company and the first and only company to bring an RNAi medicine to market. We are developing RNAi (RNA interference) as an innovative, entir...read more

Amyloidosis Foundation – LinkedIn

Amyloidosis is a rare disease that manifests itself when amyloid protein deposits accumulate in the body's organs and tissues, ultimately causing organ failure if the deposition is not stopp...read more

Amyloidosis Research Consortium (ARC) – LinkedIn

The Amyloidosis Research Consortium (ARC) addresses critical needs in clinical trials and related research for the underserved group of systemic amyloid diseases. We have created a collabora...read more

Association of Black Cardiologists, Inc. – LinkedIn

Founded in 1974, the Association of Black Cardiologists, Inc., (ABC) is a nonprofit organization with an international membership of 2,500 health professionals, lay members of the community ...read more

BSIM Therapeutics – Linkedin

BSIM’s mission is to deliver quality drug candidates with high capital efficiency against transthyretin-mediated amyloidosis, including clinical manifestations and related pathologies that...read more

Eidos Therapeutics – Linkedin

Eidos Therapeutics, a subsidiary of BridgeBio Pharma, is developing AG10 as a targeted therapeutic for transthyretin amyloidosis. The company’s singular mission is to improve and prolong t...read more

Ionis Pharmaceuticals, Inc. – Linkedin

As the leader in RNA-targeted drug discovery and development, Ionis has created an efficient, broadly applicable, proprietary antisense technology platform with the potential to treat diseas...read more

Nephros, Inc. – Linkedin

Nephros is a commercial stage medical device company that develops and sells high-performance liquid purification filters. Nephros filters capture contaminants as small as 5 nanometers in si...read more

Pfizer – Linkedin

Pfizer is a leading research-based biopharmaceutical company. We apply science and our global resources to deliver innovative therapies that extend and significantly improve lives. We make m...read more

Prothena Corporation PLC – Linkedin

Prothena Corporation plc is a clinical-stage neuroscience company focused on the discovery and development of novel therapies with the potential to fundamentally change the course of progres...read more

SOM Biotech – Linkedin

SOM Biotech is a clinical-stage drug discovery and development company based in Barcelona, Spain, with an office in the US, focused on repurposing drugs for CNS orphan indications. Its drug ...read more

Amyloidosis Board

Ideas you might love: - Heart failure nursing -Ejection fraction heart -Heart cath -Cardiac rehab -Cardiac cath lab nurse

@abcardio1 – Instagram

Eliminating #healthdisparities. Promoting prevention of #heartdisease & #stroke via #education #research #advocacy abcardio.org

@amyloidosisfoundation

Supporting patients and families while promoting research, education and awareness.

@amyloidosisjourney

Documenting my dad’s journey with AL Amyloidosis.“When oceans rise, my soul will rest in Your embrace. For I am Yours and You are mine!”