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Trusted Resources: News & Meetings
Latest announcements and gatherings
Alnylam Reports Positive Topline Results from HELIOS-B Phase 3 Study of Vutrisiran, Achieving Statistical Significance on Primary and All Secondary Endpoints in Both Overall and Monotherapy Populations
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AstraZeneca advances scientific leadership in haematology at ASH 2023
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Alnylam Announces Receipt of Complete Response Letter from U.S. FDA for Supplemental New Drug Application for Patisiran for the Treatment of the Cardiomyopathy of ATTR Amyloidosis
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Alnylam Announces Positive Outcome of FDA Advisory Committee Meeting
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Acoramidis Reduces All-Cause, Cardiovascular Mortality at 30 Months in ATTR-CM
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Eplontersen halted ATTRv-PN disease progression and improved neuropathy impairment and quality of life in Phase 3 study through 66 weeks
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India’s first Amyloid Center inaugurated at Amrita Hospital
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oneAMYLOIDOSISvoice.com Support Group Platform Begins Empowering the Amyloidosis Community With Invaluable Info About Amyloidosis
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HealthWell Foundation Opens New Amyloidosis Fund to Assist Patients With Treatment Costs
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Alexion Pharmaceuticals Partners With Caelum Biosciences to Tackle Light Chain Amyloidosis
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SCMR Partners With Foundation to Promote March as Amyloidosis Awareness Month
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Hereditary amyloidosis in Brazil: a focus on access to diagnosis and treatment
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Amyloidosis, A Tricky Diagnosis, Can Be Traced to Vietnam and Exposure to Agent Orange
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With CRISPR Gene Editing, Unique Treatments Begin to Take off for Rare Diseases
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He Inherited A Devastating Disease. A CRISPR Gene-Editing Breakthrough Stopped It
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Virtual hATTR Amyloidosis Educational Program – June 18, 2024 10:00 AM CT
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San Diego — Amyloidosis Support Groups Meeting — LIVE — Saturday, April 27, 2024
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Portland — Amyloidosis Support Groups Meeting — LIVE — Saturday, April 20, 2024
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Philadelphia — Amyloidosis Support Groups Meeting — LIVE — Saturday, April 20, 2024
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Kansas City — Amyloidosis Support Groups Meeting — LIVE — Saturday, April 20, 2024
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Amyloidosis Support Groups Webinar on Cardiac Amyloidosis
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Consensus recommendations on holistic care in hereditary ATTR amyloidosis: an international Delphi survey of patient advocates and multidisciplinary healthcare professionals
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A vision toward a more holistic approach to care in hereditary ATTR amyloidosis
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Amyloidosis now a hot topic in cardiac imaging due to new drug treatment
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Ultromics granted FDA Breakthrough Device Designation for AI-enhanced Cardiac Amyloidosis detection
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Ionis announces FDA acceptance of New Drug Application for eplontersen for the treatment of hereditary transthyretin-mediated amyloid polyneuropathy (ATTRv-PN)
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The Orphan Drug Act Turns 40: NORD Celebrates Its Impact on Rare Diseases
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CMAF Benefit Dinner: Evening of Corvettes, Dinner & Fun!
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