Google
Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Anne Marie Carr
Community Leader Founder and Executive Director
Hereditary Amyloidosis Canada
Ancaster, Ontario, Canada
My name is Anne Marie Carr and I was diagnosed with hATTR amyloidosis in September 2015 at the age of 57. My journey with this disease began in the Spring of 2010, when I made a trip to my local library. There were some stairs I had to climb and I felt as though I was going to pass out. It took me half-an-hour to have the confidence to go home. After many consults with physicians and tests for heart conditions, asthma, viruses and more, I was finally diagnosed five and a half years later with hATTR amyloidosis.
Until my diagnosis, I had never heard of hATTR amyloidosis. Upon reflection, I realized that my mother had experienced symptoms in her 50s that were similar to the ones I was experiencing. Initially, I felt alone on this journey. It was like having a life sentence without a known expiry date, like living with a ticking timebomb not just for myself, but for my husband, my son and all my siblings. I’m sure many of you fellow hATTR warriors have felt like this.
What I came to realize is that we are NOT alone. I feel strongly that by having direct access to information about the disease, the pathway to diagnosis and treatment, and up-to-date clinical trial information, we can improve the outcomes of this very real and often fatal condition. We can and must be our own advocates to ensure we get what we need to live our best lives.
myBinderRelated Content
-
Transthyretin Amyloid Cardiomyopathy (ATTR-CM): What you Need to Know About This Rare Heart Conditionhttps://www.youtube.com/watch?v=QLOyVUaz...
-
Clinical Trials Information for Patients and CaregiversClinical trials are research studies tha...
-
For Matt Millen, a New Heart Challenges Him to Find a New Life’s PurposeThere’s a hill behind Matt Millen’s ...
-
Amyloidosis Diagnosis & TreatmentAmyloidosis is often overlooked because ...
-
Choosing Not to Continue Your Career After hATTR Amyloidosis DiagnosisDeciding to leave your job following you...
-
Moffitt Cancer CenterMoffitt Cancer Center is at the very for...
-
Prem Soman on Tc-99m PYP Scan to Diagnose ATTR Cardiac Amyloidosishttps://www.youtube.com/watch?v=EZCnGFiq...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences.
More information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
