source: ChangehATTR summary/abstract:
Living with hATTR amyloidosis can cause stress and may make it hard to interact with others. It is important to remember that these are normal feelings following diagnosis. Finding ways to deal with your stress and working through your emotions can help you not feel overwhelmed. Listen to your body and know your limitations, and also listen to your caregiver as they are there to help.
After being diagnosed with hATTR amyloidosis, it’s normal to have questions about the condition, treatment and your future. You may consider writing your questions down before visiting your doctor. Preparing these questions will allow you to discuss your fears and concerns so that you’ll feel empowered moving forward.