What to Expect on Your hATTR Amyloidosis Journey | oneAMYLOIDOSISvoice
×
Or register here
Global Search

Trusted Resources: Education

Scientific literature and patient education texts

Back to Education / Patient Education

What to Expect on Your hATTR Amyloidosis Journey

key information

source: ChangehATTR

year: 2019

summary/abstract:

Family History
Given the hereditary (runs in some families) nature of hATTR amyloidosis, you may have first become aware of hATTR amyloidosis through patterns in your family’s medical history that offered clues for diagnosis. Watching a family member go through their hATTR amyloidosis journey may have shaped the way you perceive hATTR amyloidosis symptoms and treatment options – Get tested right away or choose to wait.
 
Making a Choice
Having a family member with hATTR amyloidosis means that it is possible you might have a gene change (known as a genetic mutation) for hATTR amyloidosis as well. Knowing this, there are two courses of action to discuss with your healthcare team.
 
Symptom Development
Even with a family history of hATTR amyloidosis, often times people mistake symptoms as part of the normal aging process and not signs of a more serious health problem. You may find yourself going through temporary periods of good health, but the source of your health issues remains overlooked or continue over time.
 
read more

Related Content

To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences.
More information

The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.

Close

Community Key Collaborator

Support for this landing page is provided by an independent education grant from

Translation of this platform made possible through an independent education grant from

© 2024 rareLife solutions Inc.

To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences.
More information

The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.

Close